It’s about the challenge

It’s about the challenge

It is never about winning or losing but about the challenge! Those were the words I heard while committing to #75challenge. Now mind you I already committed to doing daily videos for my YouTube Channel, and run the edge challenge (I briefly mentioned it here). And let me just add that I haven’t had a “word of the year” for the last 3 years because none of it felt good to do but this morning, while on my first workout for the day, listening to my audiobook, I recognized that this year my words are: “Challenge yourself”. I am the type of person that goes all in – it’s the getting on the airplane at 18 without looking back, it’s the starting a business and…

Leprechaun and Shamrock for your car
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Leprechaun and Shamrock for your car

St. Patrick’s day is around the corner and this Leprechaun and Shamrock for your car is a cute decoration to hang of your review mirror. You could even leave a side of the leaves open and add a piece of terra cotta with a drop of essential oil. Material: Sugar n’ Cream Solids:White 1 ballGreen 1 ballCaron Simply Soft – Chocolate 1 skein Leprechaun Head With white, ch 2.1st rnd: 6 sc in 2nd ch from hook. Join with sl st tofirst sc.2nd rnd: Ch 1. 2 sc in each sc around. Join with sl st to first sc. 12 sc.3rd rnd: Ch 1. *2 sc in next sc. 1 sc in next sc. Rep from * around. Join with sl st to first sc….

Why Use of the R-Word Needs to Stop

Why Use of the R-Word Needs to Stop

I can give you a million reasons why use of the R-Word needs to stop but I’ll start with one for right now. And his name is Lennon. You see in addition to being born with a rare genetic disorder he is also autistic which comes with a learning disability and borderline intellectually disabled. And while he may have a few extra challenges to maneuver the world, I can tell you that he’s in some ways smarter and filled with more wisdom than you could imagine. And you may think I am bias – and I probably am – but you can ask those that have met him that his matter of fact unfiltered ways and ability to talk in meme’s is anything but a…

Urea Cycle Disorder CPS 1 – Rare Disease Day

Urea Cycle Disorder CPS 1 – Rare Disease Day

My youngest son was diagnosed with urea cycle disorder cps 1 and I am talking about it today because Rare Disease Day is February 28, but what does it mean, and how does this apply to our life? Carbamoyl phosphate synthetase 1 (CPS1) deficiency (CPS1D) is a rare autosomal recessive urea cycle disorder (UCD), which can lead to life-threatening hyperammonemia. Unless promptly treated, it can result in encephalopathy, coma, and death, or intellectual disability in surviving patients. PubMed.Gov So why am I sharing with you about rare disease day? Well, the more people know about rare diseases and the impact it has on the lives of those that are impacted, the better. My initial blogging about my kid’s journey wasn’t really about bringing awareness to the world…

Crochet – A Love Story

Crochet – A Love Story

This is a story about crochet – a love story if you will. Here I was, at 17 – 6-weeks pregnant and my then partner with orders to the United States. Yep, I was dating an American Soldier. But what you may not know is that up until that point I was out all the time – all hours of the night. No, 16-year-olds don’t always make smart decisions when fending for themselves in a world that feels like it has thrown you to the wolves. I remembered in 7th grade that I learned the basics of crochet but at 13 that was grandma’ stuff and I didn’t have time for it. And yet, here I was, fascinated with the things one could do with…

Watermill Pyrography

Watermill Pyrography

Watermill Pyrography is a beautiful scene of a Watermill which have been around for about 2,000 years to help grind grain into flour. Inspired by a pattern, the image was sized to fit on to the 9″ x 7″ piece of Italian poplar and has been with polyacrylic to protect. You can see the progression of the work in the images below. This wood-burning took several days to complete as I spend 2-3 hours at a time working on it as the depth and shadows needed to stand out to give it dimension. When it comes to wood-burning, there are times when outlining your work matters and is a key element, for example being the building and wood planks. In other sections, it’s more important…

A challenge to myself – Daily Video for 1 Year
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A challenge to myself – Daily Video for 1 Year

Sometimes I think we all go mad with crazy ideas, like a challenge to myself – daily video for 1 year. I mean I talk about pushing the boundaries of the comfort zone quite a bit. And I am the first to admit I don’t love doing “live” videos and have been staying away from doing video altogether.  I’ve been slowly working on video content but even with all the inspiration, I’ve not done a great job. And since January was totally focused on working out my blog content for this blog here and The Rebels Den – I have a bit more time to pose a challenge to myself. And we will be facing a few changes and transitions over the next coming year…

Caterpillar and Flower Pattern
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Caterpillar and Flower Pattern

A fun little toy set for any little one that loves a caterpillar and flower. Replaces the button eyes for yarn made ones to avoid choking hazards. Materials: Hook: G (4.25mm)Medium worsted weight yarnStitch marker, Safety EyesFiberfill Gauge: not needed I did use a hook size smaller than recommended for the yarn to create a fabric that does not show the fiberfill Caterpillar, flower stem and center of flower are worked in the round Terms: ch: chainst: stitchslst: slip stitchsc: single crochethdc: half double crochetdc: double crochettr: triple crochetdec: decrease( ): repeat around{ }: total number of stitches Caterpillar Head: Ch 2, 6 sc in 1st chainRound 2: 2 sc in each sc (12)Round 3: sc aroundRound 4: 2 sc in sc, sc * repeat…

A metabolic genetic update

A metabolic genetic update

I don’t think of myself as a saint…as my kid’s doctor does which he shared his thought with the new team on the metabolic genetic team. It’s been a solid 10 years since we had done a “let’s see what the metabolic panel” looks like – and it still feels strange to see an ammonia level that’s in the absolute normal range. I know that Lennon doesn’t remember much of the time pre-last transplant and it was a bit odd to recall how we met his geneticist and chatted about how we discovered Lennon’s urea cycle disorder with the new team as we discussed how things are and do the metabolic genetic update. Lennon will continue to need L-Citrulline supplement – and when you do…

Item of the Month: Rose Quartz Choker with Drop Pendant
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Item of the Month: Rose Quartz Choker with Drop Pendant

Check out our Rose Quartz Choker with Drop Pendant, a handmade piece from my hands to your loved one’s neck. And with valentines day just around the corner, nothing says I love you like this Rose Quartz Choker. This Choker will give you a different kind of look with a t-shirt and a pair of jeans and some flats making your everyday wear look a bit more dressy while running errands or daily wear at work giving you that standout look. Inspired to add a bit of something-something to your wardrobe, giving your outfit the perfect touch and express your own sense of style any day of the week, this necklace was created using Rose Quartz beads mixed with golden beads and white pearls. The choker…