…that he is slowly progressing in taking food in. The other day for the first time in 8 months and 3 days he has eaten 1/2 a packet of the instant oatmeal..this is great progress.

He was recently stuck on a potato chip and pickle diet…there is something about the salt that he always had gravitated too. He also has shown interest in Rahmen noodles…so I am hopeful that one day he will eat like you and me again…as we say in these parts … Lennon’s steps!

Overall he is doing really well. He is getting around much better these days though he is still getting quite tired out. In part he is not sleeping well through the night, constant tossing and turning, which I believe to be part of his sleeping issues but also in part to him still getting used to the tube in his stomach.

I reflect every day how close we have come to losing him and how sad and heartbreaking the days were and how supportive everyone has been. Those are days I simply cannot forget but I cherish every day in which he smiles, is funny and shows his not so favorable sides.

I see the delays in his development but even have found ways to embrace them. For some time I felt angry about why this little guy had to go through all of this, but if he hadn’t it would be Lennon. The strength, courage and carefree attitude towards everything are a pleasure to know. His socialization is also improving some in which he is getting used to people he used to be friends with, but is still kind of introverted with strangers. But again there is progress!

Lennon is very engaging and everyone that seems to meet him is merely taking back by his wonderful personality and he grows into everyone’s heart effortlessly.

He still has a few procedures ahead of him (removing the central line) and eventually (not any time soon) change the peg to the button. However, while there is still risk and chances that we have to vent/air his stomach we need to take our time with this.

Lennon is still dealing with fluid, thrombosed veins, coagulation (sp) issues, and nutritional problems. He currently his Vitamin D deficient and requires additional supplements for phosphorus and potassium.

Ultimately, however, he is doing great and I am happy to see his smiles and receive his hugs every morning when its time to get him changed, wash his bedding, set up his medication, get his breakfast ready.

Similar Posts


  1. Once again….SUCH a neat little boy! We're all blest to have him in our lives. But ultimately your friends right…Thank you for being patient mom and loving Lennon unconditionally…that takes alot of courage! God Bless youre whole family!

Leave a Reply

Your email address will not be published.