To Dance and be silly and have fun with life because that is such a better option than being miserable. I don’t even think this kid knows how to be in a bad mood… I am envious… I want to be more like that… and he is teaching me how to do it!
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I still worry about my adult children
I recently read an article that has made the rounds stating that it confirms parents still lose sleep about grown children. And I still worry about my adult children. I didn’t read the article because I don’t need a study to confirm this for me. I always worry about my children – adult or not – and perhaps I worry about the adult ones just a little bit more than my youngest one. While I may have faced foster care, moving to a new country and being a rape survivor among other challenges, I do believe that parenting as a whole has been by far been the biggest challenge in my life. I’ve cried a lot over the years because of it because part of…
Is this a dream?
“Is this a dream?”, the boy asked his mother as they stood in the hallway waiting for the elevator. “What do you mean bu this is a dream?”, his mother asked curiously. “Is this a dream that I am going home? Can you pinch me? The boy replied The mother pinched him ever so gently with a slight tear in her eye realizing the impact of this little conversation. This was the conversation Lennon and I had Wednesday of last week as Lennon was going home. He had minor surgery the day before to fix his gastrocutaneous fistula, in other words, fix the hole in his stomach. And he handled everything like a champ. The waiting in the pre-op lounge was a breeze as he…
Being all emotional and not knowing why
Lennon has been quite emotional for a few weeks actually and this evening it was another I am crying and I don’t know why moments. I think in the past we have always attributed it to his medication, and yes while he is in Steroids, I don’t think it is always about what kind of medication he is taking. I think sometimes he is genuinely just emotional because he has a communication breakdown within himself – not everything is connected for him the way it is for other kids his age – add in that he is still emotionally delayed and doesn’t possess all the verbal skills, trying to decipher is like learning a new language. Most times I can only take him into my arms…
Managing anxiety without power
Ahh yeah so we survived the power outage due to the snowstorm last week – what’s difficult is the kid who struggles to entertain himself – who needs wants his video game time, who will get a bit anxious if he doesn’t get it – who finds it difficult to pee outside let alone in the dark. I wrote about our indoor camping adventure here: Indoor Camping Adventure .. the first day wasn’t soo bad… Lennon and I spend the day drawing and writing stories (me for a children’s book) – he because it was what mom was doing – the greatest part was a good time together and watching my boy come up with his own story (and write it!) The second day became a bit more…
Technical Issues and a long overdue Update!
Alright, here’s the gist of it… shortly after returning home from Pittsburgh – the company I was using to host the original website went kaputt. I have saved a backup but I am unable to restore this backup (if you know how to do it – sent me the info).. and have been trying on and off since that time…. leaving the pages of the blog blank.. well no more.. so much has happened (all good) and so much is still happening for Lennon that I must continue to write (right?)! So let’s start with the fact that Lennon is AMAZING! His liver is beautifully working in his little body. His labs continue to be stable with no concern. Lennon is fully functioning in school…
The kid’s tough!
It’s been just over a month since Lennon’s surgery and he looks fabulous. It’s like he actually has a 6-pack.. but seriously he has a stomach and not some bulge anymore. His scar is healing nicely – well it is healed at this point. There is some bruising on top that may be from some fluid that shouldn’t be there and it’s just being “watched” at this point. We did notice a decline in Lennon’s appetite, which is also supported by the weight loss. He’s at 55/56 lbs and really should be 60/62 lbs. The discussion is, of course, to give him an appetite enhancer although I am not sure that increasing his appetite is really the problem. I am noticing that he wants something…