To Dance and be silly and have fun with life because that is such a better option than being miserable. I don’t even think this kid knows how to be in a bad mood… I am envious… I want to be more like that… and he is teaching me how to do it!
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My warrior – the adventurer
So at the end of November, my kid went on an overnight field trip.Yes, you totally read this right! The 4th and 5th graders went to D.C. to visit the U.S. Capitol and museums while there. WOW! While this was first approached I was skeptical about letting him go. Who would take care of his m medications? How would he fare without his family, without video games and mostly without me? Everyone around me told me I should let him go. Half of me agreed and the other half, well did not. And then Lennon said: I really want to go to the overnight field-trip with my school because it will be fun. Well, who am I to deny him such fun? Some paperwork form…
He conquers is own world
In the past, Lennon has not been a fan of amusement parks. They push his comfort level too much and so I resigned last year to not visit one again with him – and yes I am good with that 🙂 We’ve been enjoying a few days at a nearby lake when out of the blue he shared that he would like to go to a Water Park. Knowing how he feels about amusement parks I was concerned about exposing him to the overwhelming feeling he may experience at a Water Park. Well, it just so cool that we have a few city pools nearby with slides, an obstacle bridge of sort and a whirlpool hat guide you through. Lennon was all about the sprinklers…
Is this a dream?
“Is this a dream?”, the boy asked his mother as they stood in the hallway waiting for the elevator. “What do you mean bu this is a dream?”, his mother asked curiously. “Is this a dream that I am going home? Can you pinch me? The boy replied The mother pinched him ever so gently with a slight tear in her eye realizing the impact of this little conversation. This was the conversation Lennon and I had Wednesday of last week as Lennon was going home. He had minor surgery the day before to fix his gastrocutaneous fistula, in other words, fix the hole in his stomach. And he handled everything like a champ. The waiting in the pre-op lounge was a breeze as he…
November 18th, 2008 a day to remember
6 years ago in the early morning, my phone rang with a call I didn’t expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting you know to be on stand-by. Me: Lennon is good – no changes and no cold.Click And my mind began to race and my heart began to flutter. Omg is this for real? Are we ready for this? Is he ready for this? Am I ready to let this happen? I pulled myself together because calls had to be made and things had to be readied. And then I waited for the second call to come…
Technical Issues and a long overdue Update!
Alright, here’s the gist of it… shortly after returning home from Pittsburgh – the company I was using to host the original website went kaputt. I have saved a backup but I am unable to restore this backup (if you know how to do it – sent me the info).. and have been trying on and off since that time…. leaving the pages of the blog blank.. well no more.. so much has happened (all good) and so much is still happening for Lennon that I must continue to write (right?)! So let’s start with the fact that Lennon is AMAZING! His liver is beautifully working in his little body. His labs continue to be stable with no concern. Lennon is fully functioning in school…
Ask about feelings and you get too much
I think this morning I realized that sometimes we ask of him some of the things we cannot do ourselves. Describe how you feel… It has got to be the toughest question then add a mix of mood swings and being a kid and trying to fit in and to want to be good and not annoy everyone with the sky lander you want but you just have to share because if you don’t… Well, you just might explode. Yea that was a complete run-on sentence with a purpose… Now imagine being 10 years old with ADHD and OCD ..and trying to control your emotions because that is what is expected of you .. To be normal to behave in a way that society deems…