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Today Lennon is being goofy

I am currently watching Lennon be silly and goofy, singing and dancing. It is hard to fathom that there could be something seriously wrong when he looks good and behaves normal.. yes singing and dancing and mooning (yes mooning) is normal for Lennon. Oi!

This morning we learned that the test results they are waiting on probably won’t be in for another week. They are checking soft muscle and some other DNA testing to perhaps figure out, narrow down what is going on with him. In the meantime, they are now trying to get together his IV meds so that we can go home for at least a few days, which could happen today or tomorrow. Lennon will have to come back weekly for lab work and checking in to see how he’s doing.

Lennon’s belly looks really good for a change. Some of the ascites have gone and his veins and vessels don’t show as much anymore. You can still see a lot of them, which often reminds me of a map with a bunch of blue lines. Lennon is quite the ball of energy today, which is good but also nerve-wracking..so far today he’s done belly flops on the bed, attempted to fall off the bed and ran around in this small room.. yes I would say he’s feeling good!

Of course, that doesn’t change the fact something is going on and something is wrong, we just simply don’t know what it is …yet. I hope that they find an answer. Now that they are talking about releasing us, it also means when the results come in ..depending on what they are…may mean being re-admitted for new and/or additional treatment.

This is all I have for now. Thanks for staying tuned to “as Lennon turns the world”.

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Petra Monaco

Petra Monaco

Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. 

I love all things personal growth, music, art, food, words, and more importantly coffee.

Petra Monaco

Hey there, hi!

Welcome to my space on the interwebs! I love all things personal growth, music, art, food, words, and more importantly coffee. Hi, I’m Petra. Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. And this is our life! 

Grab a cup, get comfortable, and let’s get into some shenanigans, shall we?!

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