Sometimes the memories are not old enough

Sometimes the memories are not old enough

I think at some point we are supposed to be at ease and stop with the BIG worries and just continue with the little worries that come with having a kid who has received a few livers in his lifetime. As I was helping Lennon in the shower I couldn’t help but notice his veins that are still so darn noticeable. I was holding my breath for a moment wondering if they remained the same as if they have changed and I was upset with myself for not knowing the answer to the question. It made me look at his belly to see if it is more extended or if it’s normal – well normal for him. I questioned myself if I was missing anything…

Hepatopulmonary Syndrome — A Liver-Induced Lung Vascular Disorder

Hepatopulmonary Syndrome — A Liver-Induced Lung Vascular Disorder

Just talked to Pittsburgh…. still waiting on the right size and the right blood type for a match. He will go up on the list beginning of December with 53 points (he has 50 right now). In the meantime, the scans we did with his lungs confirmed that Lennon has Hepatopulmonary Syndrome — A Liver-Induced Lung Vascular Disorder. Which is a syndrome of shortness of breath and hypoxemia (low oxygen levels in the blood of the arteries) caused by vasodilation (broadening of the blood vessels) in the lungs of patients with liver disease! The docs suspected as much and the scans merely confirmed this. Of course, it doesn’t change anything in our plans moving forward with the transplant. If anything, it’s one of those things…