Perseverance

Perseverance

Lennon is the definition of perseverance if you have followed his incredible story you, of course, know this already πŸ™‚Let me tell you, at the beginning of summer, Lennon hated the idea of camp and leaving his comfort of watching YouTube videos and playing video games. During the first week, he shared with me that he actually likes summer camp and is happy that he is able to go and participate.While those are his own little changes of attitude, it is not what I wanted to share. What is so incredible about this is that two weeks ago, Lennon was pretty scared of the water other than his regular bath of course. Even though water has always been his calm, as he got older and…

He conquers is own world

He conquers is own world

In the past, Lennon has not been a fan of amusement parks. They push his comfort level too much and so I resigned last year to not visit one again with him – and yes I am good with that πŸ™‚ We’ve been enjoying a few days at a nearby lake when out of the blue he shared that he would like to go to a Water Park. Knowing how he feels about amusement parks I was concerned about exposing him to the overwhelming feeling he may experience at a Water Park. Well, it just so cool that we have a few city pools nearby with slides, an obstacle bridge of sort and a whirlpool hat guide you through. Lennon was all about the sprinklers…

A morning of follow-ups

A morning of follow-ups

Today Lennon had to have labs, ultrasound, follow up with the kidney specialist and his gastro/transplant person. He was also supposed to see the surgeon again but he was busy helping some little dude and we opted to not wait around and just touch base with them another time. Labs look good – like really good with what came back thus far. Still waiting on a few other results that take a little longer. His spleen is a bit enlarged due to some minor blockage of the sort related to the portal vein but NOTHING like before but it is something that will be kept an eye on. As of right now we do nothing but some ballooning of the area may be needed in…