The Boy is full of Poo

The Boy is full of Poo

No really – he’s full! During this last month, Lennon has had some mysterious vomiting spells and stomach hurting like ..well a lot. And then he developed some “accidents”, I thought were kinda over considering he was quite late potty training. We thought he was maybe eating the wrong food to cause his belly to hurt.Or may he was eating too much to the point of vomiting. Nope. Took him to the doctor and did an X-Ray and literally the boy is stopped up with poo! And they don’t make he’s eyes turn brown – they are naturally that way 😉So over the upcoming weekend, we will empty the boy out from his poo and hopefully, he can return to some kind of normal. Curious…

It’s in the details

It’s in the details

So, I am going to take a moment to talk about Tuesday and Wednesday.The actual surgery was 5 hours and my poor guy took another “beating”. During the process, they had two holes in the bile duct but were hopeful they cleaned whatever may have leaked really well. Here’s to hoping anyway as that stuff is no fun and can create more havoc on the body – ask me how I know ha! Anyways, overall the surgery went well and sadly Lennon did not have a lot of muscle in the front section of the belly but enough on the sides to place a permanent mesh that will now be forever part of him. It is what we expected. And as expected, immediately after surgery…

What is happening

What is happening

Its been a bit over a month and Lennon is doing amazingly well. He’s had a good Christmas – went to visit with his grandmother and great-aunt and uncle. He’s visited with Friends on New Years and spent time with his dad for a bit. We just came home from a consult with the surgeon to discuss the hernia the reminder of the last transplant (anniversary is coming up on the 20th). We discussed why it needs to happen – we like the intestines where they are but if we don’t do this surgery – they may not stay there and that will bring all kinds of other complications. There are some challenges that are unknown – how much scar tissue is there? How easy…

Is this a dream?

Is this a dream?

“Is this a dream?”, the boy asked his mother as they stood in the hallway waiting for the elevator. “What do you mean bu this is a dream?”, his mother asked curiously. “Is this a dream that I am going home? Can you pinch me? The boy replied The mother pinched him ever so gently with a slight tear in her eye realizing the impact of this little conversation. This was the conversation Lennon and I had Wednesday of last week as Lennon was going home. He had minor surgery the day before to fix his gastrocutaneous fistula, in other words, fix the hole in his stomach. And he handled everything like a champ. The waiting in the pre-op lounge was a breeze as he…

Consult with the Surgeon

Consult with the Surgeon

Lennon’s g-tube track will not heal on its own. Since the removal of his g-tube in November – the hole still exists with some drainage every now and again and some soreness, redness and even bleeding (he can’t help but pick at it.. sigh) – so we had a consult with the surgeon. The plan will be to fix it by via surgery that’s going to give him another 4-inch scar – he will be admitted for an overnight stay to ensure that his medication regimen isn’t going haywire and that he’s stable after the recover. But wait that’s not all … …there is a possibility that during the summer at some point Lennon will face his hopefully last big surgery EVER! The current debate…

Transplant #3

Transplant #3

Update#1 We just had a face to face with the docs. Umm Lennon is extremely critical. There has been some major blood loss… connectivity issues.. they have been giving him a lot of blood.. and done some temporary rerouting of some of the veins and such… they can’t find one of them (the portal vein.. it’s kind of important) so they connected the artery for a while so that the liver has at least some blood flow in and blood flow out… the docs are struggling… but they are keeping on… it ain’t going down without a fight.. but we are walking in the middle of life and death right now.. the doc said that they are happy with 20% of a functioning liver… its…