Final Results on the Biopsy

Final Results on the Biopsy

After meeting with our local doctor on the 25th, they explained it was inflammation in the liver. Pittsburgh called today and stated that there was no change since the results in January and he continues to be in mild rejection. The good news is there is NO change …the other news is ..there is no change There will be a medication change as they will add another anti-rejection medication. It is a bit concerning as this specific medication was stopped for his rising EBV levels.. but they told me that they will keep a good eye on it. Of course, my concern now is the increased immune suppression Lennon has to handle and with fall around the corner and with a school in session…well it worries…

Elated and Scared .. all at once

Elated and Scared .. all at once

So the other night, Lennon came to me and wanted to know about his medication. Which medication he takes at night, which he takes in the morning. He looked at the bottle, attempted to pronounce the names that I hardly can pronounce. He received his evening dose.The next morning dose.Then last night I hear: “Mommy, I took my medication!” BIG DOUBLE YIKES! BIG DOUBLE WOO for taking charge and advocating for himself.but BIG DOUBLE YIKES! I am so proud of him though but it was scary because, well… did he take the right medication. He did! But now there are some more rules and steps we have to take to help him to ensure that he is indeed taking the right medication at the right…

The Boy is full of Poo

The Boy is full of Poo

No really – he’s full! During this last month, Lennon has had some mysterious vomiting spells and stomach hurting like ..well a lot. And then he developed some “accidents”, I thought were kinda over considering he was quite late potty training. We thought he was maybe eating the wrong food to cause his belly to hurt.Or may he was eating too much to the point of vomiting. Nope. Took him to the doctor and did an X-Ray and literally the boy is stopped up with poo! And they don’t make he’s eyes turn brown – they are naturally that way 😉So over the upcoming weekend, we will empty the boy out from his poo and hopefully, he can return to some kind of normal. Curious…