To Dance and be silly and have fun with life because that is such a better option than being miserable. I don’t even think this kid knows how to be in a bad mood… I am envious… I want to be more like that… and he is teaching me how to do it!
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November 18th, 2008 a day to remember
6 years ago in the early morning, my phone rang with a call I didn’t expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting you know to be on stand-by. Me: Lennon is good – no changes and no cold.Click And my mind began to race and my heart began to flutter. Omg is this for real? Are we ready for this? Is he ready for this? Am I ready to let this happen? I pulled myself together because calls had to be made and things had to be readied. And then I waited for the second call to come…
I still worry about my adult children
I recently read an article that has made the rounds stating that it confirms parents still lose sleep about grown children. And I still worry about my adult children. I didn’t read the article because I don’t need a study to confirm this for me. I always worry about my children – adult or not – and perhaps I worry about the adult ones just a little bit more than my youngest one. While I may have faced foster care, moving to a new country and being a rape survivor among other challenges, I do believe that parenting as a whole has been by far been the biggest challenge in my life. I’ve cried a lot over the years because of it because part of…
Managing anxiety without power
Ahh yeah so we survived the power outage due to the snowstorm last week – what’s difficult is the kid who struggles to entertain himself – who needs wants his video game time, who will get a bit anxious if he doesn’t get it – who finds it difficult to pee outside let alone in the dark. I wrote about our indoor camping adventure here: Indoor Camping Adventure .. the first day wasn’t soo bad… Lennon and I spend the day drawing and writing stories (me for a children’s book) – he because it was what mom was doing – the greatest part was a good time together and watching my boy come up with his own story (and write it!) The second day became a bit more…
Perseverance
Lennon is the definition of perseverance if you have followed his incredible story you, of course, know this already 🙂Let me tell you, at the beginning of summer, Lennon hated the idea of camp and leaving his comfort of watching YouTube videos and playing video games. During the first week, he shared with me that he actually likes summer camp and is happy that he is able to go and participate.While those are his own little changes of attitude, it is not what I wanted to share. What is so incredible about this is that two weeks ago, Lennon was pretty scared of the water other than his regular bath of course. Even though water has always been his calm, as he got older and…
Not a soul awake (in my house) at 4:30 in the morning
Thunderstorm came through at 4:30 waking me from my slumber and not a soul awake in my house other than myself. I tossed + turned for about an hour before I said to hell with it and got up to make my first cup of coffee. And honestly I like this quiet mornings – not that my mornings are obnoxiously loud. Lennon will wake about in about an hour or 2, giving me a bit of time to record some videos for a course I am working on. But for now there’s not a soul awake. But in the meantime, I sat with my planner this morning and looked at the blank space of my gratitude list and I vividly recall times when coming up…
Some fun and some challenges
On Saturday we took the whole family to the Monster Truck show and let me tell you that Lennon was elated and excited. He could not wait to get there (he was talking about it all day). He really liked the light show (the trucks were making their entrance and being introduced) and the fact that one of them fell over doing a trick. he loved the cotton candy and he loved the popcorn. I remember sitting and reflecting that a few years ago this would have been impossible to do because it was challenging to take him to places without ‘crashing’ into a high ammonia level or simply because he couldn’t sit still for so long. He stayed in his seat just about the…