Level 88

There have been many questions as to why Lennon would/does need another transplant. Let me first say that he is medically stable. This there is no “rush” per se and with that being said, we know the following: Lennon has a clot in the portal vein which is one of those important elements. He also has thromboses with the hepatic vein and then there was a third clot found but I don’t know the state of this one at this time. The issue is because the portal vein is clotted, the body created quite a few more vessels. If you know Lennon, have seen him you will notice lots of lots of blue lines (veins) on his belly and the back. This happens because the…

We are closing in on Lennon’s official birthday party this Saturday. He appears to do well though seems to be coming down with a small cold and unfortunately its the season for sniffles. He still chooses to not be very active and we are certainly not pressuring him to do anymore than he wants to or can. Lennon goes through a lot of food as if his mind can’t make up what he really wants. He chooses some foods he liked before the transplant.. like oatmeal but is also venturing out to foods he could not have before like cereal with milk. It is very slow progress in his recovery and as we are home I acknowledge that Lennon requires a lot of care and…

Lennon is doing well. After the procedure there appeared to be a kink in the tube on the inside that they had to fix yesterday. Overnight they ran Pedialyte in 10ml increments every two hours and by this morning he was back to the ‘normal’ rate of 80 MLS/an hour. This morning they are giving him a diluted version of his peptamin jr. to see how he tolerates it. In about an hour or so we will be going home as he is doing very well.   The care he requires for the next two months is going to be incredibly big. He has the tube out of his stomach probably about 12 inches if not more out of his belly. Once it is healed…

Tonight I was painfully reminded that I am human (who would have thought it?) and that at times I don’t have it all together. A small mistake made Lennon cry out, his belly hurt and vomit. Normally I would panic but one look at the feeding pump and I saw the problem… I forgot to change his rate from the day feeds to his night feeds. Lennon the trooper…went to the bathroom…got undressed…got cleaned up and is back in bed, while I’m sitting here thinking how did I miss this and why didn’t I pay attention to it? So yes I recognize I am human, but I’m still going to beat myself up over it because it didn’t have to happen. The other day I…

I am beyond tired and certainly know that my driving force is the love for my son. I haven’t seen my house or bed since Friday as I travel between work and the hospital. Last night Lennon decided he didn’t want the IV – played with the tape – and ultimately pulled out his IV. They had to replace it of course, but come this morning the line and his blood was not working and all the heparin and TPA didn’t do any good. And the IV was replaced – again. He will be staying in the hospital again tonight – his level is around 138ish – thus still not well enough to go home – though he is eating a bit better. That’s all…