fbpx

Heading into a similar journey?

Last week we received some good news. Lennon’s O2 was 100. It hadn’t been that in a very long time. He gained weight and is now a whopping 51 lbs.

Today we received some not so good news. The past few weeks the docs stopped Lennon’s aspirin regimen and added a vitamin k shot due to all the bleeding/bruising Lennon was dealing with. They checked his factor 5 and factor 7 levels last week, thinking and hoping that his blood is stable and that the liver is fine. However, today I learned that the levels were low and that this indicates the liver continues to be ill.

In addition, the ascites in his belly has not gone away, perhaps it has gotten bigger. The docs feel that while they could drain in, he is not a good candidate for a shunt.

Next week they are doing an ultrasound to check on the fluid and the clots that were noted in the portal vein and some other areas.

What does this mean? This means there is already a conversation about putting Lennon back on the transplant list …with low priority for now until his health declines more?! I will know more on Wednesday.

My thoughts are jumbled and my heartaches. Lennon looks so good and is acting so healthy. It’s hard to fathom that Lennon is ill and that once again we are facing another difficult journey…

Free Resources:       Crochet Bistro     Pyrography Cafe      Coloring Lounge

Petra Monaco

Petra Monaco

Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. 

I love all things personal growth, music, art, food, words, and more importantly coffee.

Petra Monaco

Hey there, hi!

Welcome to my space on the interwebs! I love all things personal growth, music, art, food, words, and more importantly coffee. Hi, I’m Petra. Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. And this is our life! 

Grab a cup, get comfortable, and let’s get into some shenanigans, shall we?!

Follow Me

Free Coloring Pages

Free Coloring Pages

Subscribe to my Newsletter for new blog posts, tips & new art.

Let’s stay updated!

Coloring Page Membership

Coloring Creatives Membership

3 Comments

  1. Barbara

    I hope something reverses…. You've been through so much already. Keeping you in my thoughts.

    Reply
  2. Steph

    Oh I can just imagine that sinking feeling you must feel in your gut with this news. My stomach sinks thinking about it and I know yours must feel upside-down. What a struggle to see Lennon look so healthy and to know that underneath he's so sick. What a inner war it must be to think about another transplant. What a gift we have these days to have the medical technology to do such things, but oh how you must be struggling to come to terms with everything. Praying for strength and healing and peace of mind to do what is best for Lennon and continue to be there for him and the rest of your family.

    Reply

Leave a Reply

This site contains affiliate links to products. We may receive a commission for purchases made through these links. Please see our Disclosure Page for details.