Today Lennon turned 6 and every time I try to reflect on this…my eyes go from dry to wet. I remember when he first came home how cute he was but also how challenging he was to take care of.

I remember when he started to get his teeth and walk and that all he wanted was chips and hot dogs, and I remember how many times a day and night I would walk in or wake up to him being so sick and unresponsive.

I remember telling the doctors there is something wrong but all they could tell me is that he was dehydrated. I remember the days when I could not understand a word that he said when he should have been able to speak clearly without difficulty.

I remember the day of his diagnosis like it was yesterday, the fear, the worry of the unknown future. I remember the struggle to get him to take his medications and his “special” ice cream (aka formula) and all the things he could not eat.

I remember the day of the discussion of the transplant and I dream about the last 7 months, think about them and the recognition of what a miracle he is.

I remember and appreciate the smiles and giggles I can hear, I even appreciate the hysterics he goes through because he is in pain or because he is of his steroids.

I smile when I think about him running when he still is challenged to walk without falling. I love how he demands his attention, even if it is inconvenient for everyone else.

I love that he says the funniest things, that he likes food fights and that he is full of love and life.

Thank you!

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  1. What an amazing little boy. Happy Birthday Lennon!!

  2. Congratulations Lennon on making it through another year … and what a year it has been. Congratulation to your mom and dad also, as well as your entire family for making it to this date and being able to celebrate!! When our kids are healthy we so easily take thse things for granted, but indeed what a blessing it is that Lennon is able to celebrate his 6th birthday.I hope you all have a fun and enjoyable day!!

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