Hanging in … Hanging On

This week Lennon’s points on the transplant list should go up.. in the meantime… Lennon’s progressing to be a little bit sicker. Sick to the point that we now decided to restrict any extra extraneous activity such as physical education in school and try to keep a very active 7 years old mellow/non-active. I have no idea how this should or would work… because it isn’t right now.. well I can control P.E. and Recess by not having him in school… I can’t control him not running from one end to the house to the other.. ugh…

There is conversation about whether or not he will require supplemental oxygen.. and that can be tricky… in some folk oxygen makes them loopy, changes their personality.. in other words, they may appear crazy.. in other folks it doesn’t.. and merely just gives them oxygen.. so this is something still being worked out.. its terrible watching that life-loving boy run and his lips and/or fingers turning blue… simply because the oxygen can’t get into his lungs properly…Lots of times by the end of the day…

Lennon’s looks very ill despite the quirkiness.. he doesn’t act it… that’s for sure. He’s been dealing with the same/similar cold for a while now and it won’t go away… coughing also a symptom of the lung issue… starts to increase in the evening hours… the challenge is knowing is the coughing from the lung issue or is it because of the drainage of the sinus into his throat…

It makes my heartache.

Petra Monaco

Hey there, hi!

Welcome to my space on the interwebs! I love all things personal growth, music, art, food, words, and more importantly coffee. Hi, I’m Petra. Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. And this is our life! 

Grab a cup, get comfortable, and let’s get into some shenanigans, shall we?!

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