Feeding/Food : needs to be worked on and worked out, start slowly with the food he likes prior to transplant to establish relationship with food – he also may be too tired to eat
Narcotics: are wheened alternating days 10% – this will take about 2-3 weeks before he is off that stuff
Speech: doing better – has some gaps – is at a level of a 3 yr old – but not a complete assessment has been accomplished yet due to lack of cooperation from Lennon
Physical: Doing better – gets fatigued real quick – but improvement is there
OT : more active today – some self-help skills need worked on
School: making some progress – vision is good – perhaps some depth perception issues – again takes time to warm up
They also want to address socialization because he appears to be a little too shy – more than he was before – Time frame to be at Kluge 2-4 weeks – depending on food intake and progress – if he’s still not eating like they want him to – may or may not go home with NG tube – avoiding G-tube as best as we can – may introduce meds for increased appetite.