Game Plan for Lennon and Update

Feeding/Food : needs to be worked on and worked out, start slowly with the food he likes prior to transplant to establish relationship with food – he also may be too tired to eat

Narcotics: are wheened alternating days 10% – this will take about 2-3 weeks before he is off that stuff

Speech: doing better – has some gaps – is at a level of a 3 yr old – but not a complete assessment has been accomplished yet due to lack of cooperation from Lennon

Physical: Doing better – gets fatigued real quick – but improvement is there

OT : more active today – some self-help skills need worked on

School: making some progress – vision is good – perhaps some depth perception issues – again takes time to warm up

They also want to address socialization because he appears to be a little too shy – more than he was before – Time frame to be at Kluge 2-4 weeks – depending on food intake and progress – if he’s still not eating like they want him to – may or may not go home with NG tube – avoiding G-tube as best as we can – may introduce meds for increased appetite.

Petra Monaco

Petra Monaco

Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. 

I love all things personal growth, music, art, food, words, and more importantly coffee.

Petra Monaco

Hey there, hi!

Welcome to my space on the interwebs! I love all things personal growth, music, art, food, words, and more importantly coffee. Hi, I’m Petra. Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. And this is our life! 

Grab a cup, get comfortable, and let’s get into some shenanigans, shall we?!

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