So the procedure appeared to have gone well. Lennon is very unhappy about the tube in his belly and was very concerned about where his other tube (the one stuck to his face and back) was. He has a hard time understanding that the tube in the belly will do the same thing, so in time I hope he can relax a little.

The next two months are going to be critical for any pulling out that may occur and we will have to be diligent to keep up with him, and the tube. In the next day or so, we will go through the process of learning about this tube as it has two openings, one that goes into the stomach and the other that goes deeper into the intestines.

This will be beneficial in case there is air build up in his stomach, we can decompress, so that he may eat, while his feeds and medications will go to the intestines. This could be short-term or long-term. If this is short-term, then the docs will change the tube to something that is closer/flatter to his skin, with no dangling tube.

I am not sure what I expected or what I should have envisioned, perhaps I shouldn’t have. However, this really brings down the point that he will require constant supervision and a way to secure the tube while he is not receiving feedings or fluids so that he may run and roam around.

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