Most dreaded day of the year

Most dreaded day of the year

IEP meetings are sometimes a curse and a blessing. One one side they tell you how much progress your child has made... and yes Lennon has made a tremendous amount of progress in all areas. One the other side, he is still so very much behind on everything.. reading on...

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The Boy is full of Poo

The Boy is full of Poo

No really - he's full! During this last month, Lennon has had some mysterious vomiting spells and stomach hurting like ..well a lot. And then he developed some "accidents", I thought were kinda over considering he was quite late potty training. We thought he was maybe...

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Boy continues to amaze us all

Boy continues to amaze us all

Let me just say that it has been incredibly difficult for Lennon. He's been in a lot of pain, broke out in blisters from tape and started to itch from too much morphine. He was irritable and non-stop crying and nothing I did helped him to the point we were crying...

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It’s always something around here

It’s always something around here

Picture warning! This may not be for everyone to see! So you may or may not be aware that Lennon has an adhesive allergy i.e. tape, band-aid, etc. I think it has decided to show its ugly head after they pulled the big bandages off. He's itchy and still in pain but...

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It’s in the details

It’s in the details

So, I am going to take a moment to talk about Tuesday and Wednesday.The actual surgery was 5 hours and my poor guy took another "beating". During the process, they had two holes in the bile duct but were hopeful they cleaned whatever may have leaked really well....

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What is happening

What is happening

Its been a bit over a month and Lennon is doing amazingly well. He's had a good Christmas - went to visit with his grandmother and great-aunt and uncle. He's visited with Friends on New Years and spent time with his dad for a bit. We just came home from a consult with...

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Update anyone?

Update anyone?

Man o man, I have been busy though I have been trying to figure out exactly how and with what but I think life IS happening.  Although it is challenging on most days due to Lennon's excessive OCD. It is very difficult for him to focus on anything else - his current...

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A morning of follow-ups

A morning of follow-ups

Today Lennon had to have labs, ultrasound, follow up with the kidney specialist and his gastro/transplant person. He was also supposed to see the surgeon again but he was busy helping some little dude and we opted to not wait around and just touch base with them...

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Time for that Hearing Aid

Time for that Hearing Aid

We recently had a consult with the Audiologist. The same one that six months ago said, she did not think a hearing aid would be a good idea. Lennon had a one-on-one aide in school that would direct/redirect Lennon as needed. However, the reality is that he will not...

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Is this a dream?

Is this a dream?

"Is this a dream?", the boy asked his mother as they stood in the hallway waiting for the elevator. "What do you mean bu this is a dream?", his mother asked curiously. "Is this a dream that I am going home? Can you pinch me? The boy replied The mother pinched him ever...

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Let me tell you a story…

Let me tell you a story…

...of a boy who once upon of time didn't know how to play.  He just didn't have the imagination or ability to use his imagination. This little boy required everyone else to engage and entertain him to give him the ability to play. His mother was sad because she...

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Consult with the Surgeon

Consult with the Surgeon

Lennon's g-tube track will not heal on its own. Since the removal of his g-tube in November - the hole still exists with some drainage every now and again and some soreness, redness and even bleeding (he can't help but pick at it.. sigh) - so we had a consult with the...

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