I miss running. I wanted to challenge myself and see if I could achieve 2021 miles this year - and I've already been a bit behind at the beginning of April - but then the thing I dreaded happened. I went on a run not just to focus on my challenge goal and regular...
Changes in latitude = changes in attitude! 31 days and my partner is Texas bound. I will be following in 2022 and there are reasons for that. Lennon has one more year of high school left and he's also transitioning into adulthood and as someone who has a disability,...
I can give you a million reasons why use of the R-Word needs to stop but I'll start with one for right now. And his name is Lennon. You see in addition to being born with a rare genetic disorder he is also autistic which comes with a learning disability and borderline...
My youngest son was diagnosed with urea cycle disorder cps 1 and I am talking about it today because Rare Disease Day is February 28, 202, but what does it mean, and how does this apply to our life? Carbamoyl phosphate synthetase 1 (CPS1) deficiency (CPS1D) is a rare...
I don't think of myself as a saint...as my kid's doctor does which he shared his thought with the new team on the metabolic genetic team. It's been a solid 10 years since we had done a "let's see what the metabolic panel" looks like - and it still feels strange to see...
Hey there, hi!
Welcome to my space on the interwebs! I love all things personal growth, music, art, food, words, and more importantly coffee. Hi, I’m Petra. Introverted Rebel, author, artist, teacher + coach, doer of things, and a mom to 3 boys – one with some extra needs that have forever changed my life. And this is our life!
Grab a cup, get comfortable, and let’s get into some shenanigans, shall we?!
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