Lennon Steps

Lennon Steps

Lennon StepsLennon’s story is really kind of crazy and maybe even in parts unbelievable except that it is as real as you and me.

You see when he was born, life was complete. I had 3 amazing boys and I was good with this decisions. Little did I know that having my tubes tied perhaps was my saving grace with the years that followed.

Here was this cute little boy (yes I am biased) but life wasn’t cute at all. I knew deep down that something was not right but for the life of me, I couldn’t put my finger on it.

All I knew is that I was losing my mind with days of screaming and unable to bring satisfaction to my little guy.

And little did I know that he would bring a tremendous amount of change to our family. There is no doubt that parts of me are filled with guilt because it caused me to neglect my other children throughout, but I am also so incredibly grateful for having such amazing boys.

There is a level of understanding that sacrifices needed to be made in order to save their brother.

When my prayers were finally were answered and we finally had a diagnosis, Lennon was 4 years old. And he (we) are so lucky that he is still here with us today.

Urea Cycle Disorder is no joke, it’s deadly. It has taken many lives before Lennon and continues to take lives to this day.

And as we ventured onto our journey of living in medical chaos and survival, I started writing. And as we were sitting in Pittsburgh Hospital in January of 2011 and the doctors gave him his third liver, I decided it was time to write a book.

His story needed to be shared because it brings to the forefront what mindset, faith, and hope really mean in this world.

And I know full well that it all could have gone so differently.

And I know full well that it still could but I keep the faith and the trust that all will work out with the best intentions.

And I live life with gratitude because if it has taught me one lesson, it is that life is too short and the time is now to take action on your dreams.

You can get the paperback or Kindle version here!

Lennon Steps was like having a baby

Lennon Steps was like having a baby

LennonstepscoverLennon Steps are similar to baby steps, except that these are infused with spunk and spirit in Lennon who sneezed himself into the world.

In my new book, Lennon Steps, I share the journey of my son Lennon, diagnosed with a rare genetic disorder and what would be years of not knowing what life will be like after liver organ transplantation.

***

And in a few days, Lennon Steps will be published and it occurred to me that this whole process of getting this book together is like having a baby.

It starts with the conception of an idea that lingers for months and sometimes even years until you realize that birth is inevitable. You are nurturing your baby, putting words on paper just to spend a month of being tired from editing, reviewing, re-editing and proofreading before coming to the realization you need a due date.

Once of course, you have a due date, you are beginning to feel the stress of making everything perfect for the baby to arrive. You pick out a name and even the idea of a cover photo but leaving the final decision until the baby arrives. You worry yourself ill about if this baby and wonder if it will be well received.

During the final days of the book pregnancy, you are filled with anxiety about formatting, having the perfect cover. You are thinning about the book signing, so everyone can meet this beautiful baby of yours while trying to figure out how many books you will need to have on hand.

You are getting more anxious as you are waiting for the proof to return and just want the process to be over with because it’s been a long pregnancy.

I will cry tears of joy when I hit the button of approval and again when I hold my own personal copy of Lennon Steps.

***

 Lennon Steps