3 Tips on doing it all your way

3 Tips on doing it all your way

There is no one size, one system or one path that fits all. To think that there could be is an illusion and a huge disservice to you.

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Sure, there are elements that may have commonality and this is where these three tips can come in handy!

Be open to learning

You don’t know, what you don’t know and the only way to know is to learn. Shutting yourself out from the openness to new information causes you to stay stuck and hinders the progress you would like to see in your life or business.

Tune into your intuition

Your intuition will help you discern what feels good, what information you want to apply and guides you on your own journey. They someone achieves their goals, may not be your way, trust that this is okay. Your intuition has no room for envy on how someone achieves their success. We are all on a different path and while the journey can look similar, how it’s achieved may not be.

Implement what feels good

When you have opened yourself to learning and taken in the information, given your intuition permission to guide you, it’s time to implement what feels good. Sure, there are things we all have to do that we don’t enjoy and some of those things can and ought to be delegated, but not everything can be. But the more you do that feels good, the less you are avoiding those that don’t.

Some things that can help is to look at it from a new perspective. Instead of saying “I have to do x, y, and z… you could simply say “I get to do x, y, and z …”

You don’t have to do anything, okay well except maybe pay taxes and such, but when it comes to your life or your business. you don’t have to do anything except what you want.

There’s is no diet that is the true and right way.

There’s no goal setting that is true and the right way.

There’s no business system that is true and the right way.

There is, however, your way.

And what that looks like is totally up to you.

You just have to decide what it is you want, start learning and begin to implement.

Parent Teacher Conferences break my heart

Parent Teacher Conferences break my heart

I recently had parent-teacher conferences for Lennon and I tread them every single time because I tend to already know how it will go and reminding us where he struggles the most.

And yet at the same time, it will give us insight on what specifically we may need to work more on without pushing the kid to the breaking point because really he likes school and secondly, well he loves to read… who knew right?

Lennon is failing academically BUT he has made a tremendous amount of progress at the same time. It isn’t enough to be on the same level as his peers but its progress nonetheless and we will celebrate that!

Something that should be celebrated is the friends Lennon has made. He struggles with social anxiety and it isn’t an easy thing for him but he’s been able to be with the same kids for several years now and has some good strong bonds with them. Of course, this aids to his disorganization and distraction because having ADHD isn’t enough đŸ˜‰

These conferences really break my heart though because he works so hard or much harder than most. He is pulled out for math and some other academics spends time in speech, occupational therapy, and physical therapy to help him gain the skills set forth by today’s standards that he should meet.

A few more tools have been set in place in which he requires more support i.e. making sure he actually brings his homework home rather than chatting away and “forgetting”.

And yet, for Lennon all of where he is right now – is totally good enough.

Not necessarily easy and I do hope for more (parent thing I suppose) but I recognize that this is where he is and that next year he will not be in this same place.. because there will be more progress.

Any progress is better than no progress!

The Hearing Aid has arrived

The Hearing Aid has arrived

Today Lennon received his hearing aid. He initially was very excited about it and asked all the time. During the appointment, he was shy and reserved but appeared to be approving of the new sounds he was now able to hear – and the sounds he is able to hear a lot better. Due to the unique hearing loss that he has, we weren’t sure initially that a hearing aid would even benefit him. His hearing loss just like anything else about Lennon is rare and a matter of fact the doctor said she really hasn’t seen a hearing loss like his … you just have to smile don’t you?

Well, he returned to school and received help from another student that also has a hearing aid and I am glad to know that he has support at school from a teacher that will help him – it’s a pricey tiny little thing that I couldn’t afford to replace – so here’s to hopefully not losing it đŸ™‚

Thought what I love about it the most I think that he was able to choose his colors green for the inside piece and blue for the “behind the ear” piece.


Here’s to being able to hear!

Maturity in progress

Maturity in progress

Sometimes when raising a child with special needs we wonder how maturity will progress and we question at times if it will ever progress. This last week, however, I have seen maturity and a want or need to be a little bit more independent.

Lennon has initiated taking his medications. At breakfast or bedtime, he gets the tub of meds and looks which give the opportunity to teach him not only what medication to take but what each medication is for – because he asks! The kid wants to know what he is taking medication for.

He now helps to set his med out as well as cutting the ones in half where a whole one is not required. This is quite a  milestone for Lennon and leaves me with hope for his future. Of course, not all areas are maturing but that is alright isn’t it? I mean he’s alive and driving me batty sometimes and that is an amazing thing.

I leave this post today with a picture of him earning a reward for great reading – another area he has grown so much!

 

The education frustration

The education frustration

Before I get into this post – Lennon is doing ok. He currently has a terrible cold (and has brought on this post) but still exhibits the same thirst for life and learning as ever. There has not been a word about the transplant and so we are still waiting – kind of eerie as we are coming up on the 2nd year anniversaries for transplant one and two.

Now to my grief if you will… so Lennon has a cold brought on oh by the weather change – it is fall, now and well that the people in the school can’t make sure he puts his coat on before he leaves the building and well that he is still immune suppressed etc. Yesterday, Lennon went to school just like always when he has a bit of a runny nose. It wasn’t anything that any of us have never dealt with because I am sure we have.

At 12 p.m. my eldest calls and says the school wants us to get Lennon because they can’t get anything done since they are constantly wiping his nose. Uhm Lennon can wipe his own nose. Yes he has a disability and yes he has special needs but there are some things he can do. He only had one hour left of school – that last hour consists of recess and lunch. Say that again and they didn’t have anyone that could bring him can we come get him. Ok – we did. Perhaps it was worse than I thought – perhaps he had developed a fever. Nope, just a runny nose that’s all.

Then I find a note in his backpack stating that Lennon had a runny nose and it needed constant wiping and they couldn’t’ get much done due to the constant wiping of said nose. What? Again Lennon could have done this himself and I am growing frustrated. Just last week I learned that he wasn’t receiving speech therapy like I believed he was receiving and I feel he needs to be receiving.

So now I am left with the thought, well maybe I am better off. No, maybe he’s better off if he’s being homeschooled. Then I would know that he’s working, and learning – because he can learn. He has finally learned to identify all the letter of the alphabet (YAY LENNON).

He still struggles with his numbers but even that will come in time. The one thing that hinders me from really moving forward is the socialization that Lennon gets from going to a public school. Yes, I know homeschoolers get to do lots of activities, with the right organization play dates, field trips and so forth. Next summer he can even start Special Olympics as he will be the right age.. but the question then becomes:

Can I manage to homeschool him? Can I handle the pressure and stress that does come with it, when he’s having a terrible day or a meltdown as he’s becoming frustrated. Would he still enjoy learning as much as he does now?

There are many questions and feelings I have about this. For one, I shouldn’t even have to consider homeschooling him if the public education system would do what they should – educate. I am not saying all school systems are like that but I am feeling a bit frustrated when it comes to the special needs children. Lennon is in a regular 1st-grade class and works on a kindergarten level – he knows he doesn’t know the same work as the other kids – he does understand some of what is going on. I have gotten some support in venturing into this but I just don’t know if this is the answer for Lennon. Maybe it’s just this year – maybe its just this teacher I don’t know..

I think however that my decision shouldn’t happen now – it should wait till after the surgery because I think I already think he should be home (in a bubble again) after he is able to return home. I don’t think I will be trying to send him off to school as soon as possible – not that I really pushed it hard – but he loves other kids. Maybe I will only homeschool him for a year and then re-evaluate.. maybe..

This definitely requires some pondering, researching and finding the resources for homeschooling special needs children, education for special needs children in any capacity for the public school system.. tho I will welcome your feedback… thanks for listening