My Books:

Hi there!

In case you don’t now me, I’m a writer with a tremendous amount of love and appreciation for coffee. Not sure whether it is because National Coffee Day falls on my birthday or simply because it’s gotten me through some of the most challenging times in my life.

But before all of that I’m a mom of 3 boys navigating the world with a rare genetic disorder and other special needs.

On this blog, you’ll read about our journey from diagnosis and current happenings as we continue to navigate life and facing transitions.

Please note that some of the earlier posts may contain some graphic pictures that are a little bit too hard to handle for sensitive souls!

The latest on the Blog

Never Give Up Hope – Interview with Carol Graham

Never Give Up Hope – Interview with Carol Graham

Once upon a time I hated talking about me and my story. The memories, the pain was all too much to bear. It was like I was reliving all that I experienced and frankly who wants to relive trauma? I certainly don't, but on my own healing journey and with the support of...

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IEP’s and Evaluations make my heartache

IEP’s and Evaluations make my heartache

This last week has been a tough one when it comes to discussing Lennon's progress and the lack thereof - all at the same time. Last week, we had his annual IEP meeting and discussed where he has made progress and yes there have been some. He's done with physical...

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November 18th, 2008 a day to remember

November 18th, 2008 a day to remember

6 years ago in the early morning, my phone rang with a call I didn't expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting you know...

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