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The end of 2009 and Beginning of 2010

Today is the last day of 2009...and what a year it has been. The year has been an incredible journey of faith, spiritual, strength, courage, and hope. Lennon has come a long way, from a little boy who fought to live. But then isn't that his story? He patiently let...

It’s back to school

It has been over a year since Lennon went to school and on Monday we had an IEP meeting and today is the second day of school. Its been a challenging year with many times me wanting to wrap him in a bubble. Lennon is doing incredibly well and while he still gets...

Reflection

As I sit here I was reminded again that life is too short…tomorrow is the first year anniversary of Lennon's liver transplant and Saturday will be the first year anniversary for the second transplant…I tell you its been a crazy year, but what I am constantly...

Medication and in the future school

Lennon takes a lot of medication most of them are related to his liver transplant. However, Lennon does have a sleeping disorder in correlation with behavioral issues and mood swing issues. Last week we went away with the clonidine patch and the pill regime instead...

Ch-Ch-Changes

I must tell you that Lennon is doing remarkably well, rotten ( in a good way I suppose) to the core. He is gentle, loving, kind, considerate. He is also manipulative, moody, demanding. He loves cartoons and video games and thinks that by not playing video games he's...

Adventure

Today we are doing something we haven't done in awhile ~ heading to Blue Ridge Parkway for some hiking, playing and being outdoors kind of fun. We love to head out there, find us a trail and let the kids loose. Lennon used to really enjoy that until his ammonia had...

How things are

Now that Lennon is doing well, I find that I am less blogging as we are busy with normal life stuff! This is good but doesn't mean life isn't still challenging and instilled with worries and fears. In the past few weeks, Lennon has been doing extremely well. We note...

We still wonder about the ammonia

So I have been staying away not because I didn't want to write, but I have been busy as well as everyone in our house was sick with the nasty cough & cold, including Lennon. We did an overnighter at the hospital just to make sure that he wasn't developing...

When my third son was born we lived in bliss that was short-lived. For years, because mother’s intuition doens’t lie, we were on the journey of tyring to figure out what was wrong. Just shy of  of being 4, we learned that he in fact had a rare genetic disorder.

Life as we had dreamed about was over but what came out of it was something more!

More challenging, more heart-wrenching and yet more beautiful. A life without excuses and lots and lots of coffee. 

The end of 2009 and Beginning of 2010

The end of 2009 and Beginning of 2010

Today is the last day of 2009...and what a year it has been. The year has been an incredible journey of faith, spiritual, strength, courage, and hope. Lennon has come a long way, from a little boy who fought to live. But then isn't that his story? He patiently let the...

It’s back to school

It’s back to school

It has been over a year since Lennon went to school and on Monday we had an IEP meeting and today is the second day of school. Its been a challenging year with many times me wanting to wrap him in a bubble. Lennon is doing incredibly well and while he still gets...

Reflection

Reflection

As I sit here I was reminded again that life is too short…tomorrow is the first year anniversary of Lennon's liver transplant and Saturday will be the first year anniversary for the second transplant…I tell you its been a crazy year, but what I am constantly reminded...

Medication and in the future school

Medication and in the future school

Lennon takes a lot of medication most of them are related to his liver transplant. However, Lennon does have a sleeping disorder in correlation with behavioral issues and mood swing issues. Last week we went away with the clonidine patch and the pill regime instead...

Ch-Ch-Changes

Ch-Ch-Changes

I must tell you that Lennon is doing remarkably well, rotten ( in a good way I suppose) to the core. He is gentle, loving, kind, considerate. He is also manipulative, moody, demanding. He loves cartoons and video games and thinks that by not playing video games he's...

Hi, I’m Petra!

Mom of 3 boys – the youngest who is special needs. I blog about our medical journey, the challenges we are facing and other odds and ends.

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