Boy continues to amaze us all

Boy continues to amaze us all

Let me just say that it has been incredibly difficult for Lennon. He’s been in a lot of pain, broke out in blisters from tape and started to itch from too much morphine. He was irritable and non-stop crying and nothing I did helped him to the point we were...
It’s always something around here

It’s always something around here

Picture warning! This may not be for everyone to see! So you may or may not be aware that Lennon has an adhesive allergy i.e. tape, band-aid, etc. I think it has decided to show its ugly head after they pulled the big bandages off. He’s itchy and still in pain...
It’s in the details

It’s in the details

So, I am going to take a moment to talk about Tuesday and Wednesday.The actual surgery was 5 hours and my poor guy took another “beating”. During the process, they had two holes in the bile duct but were hopeful they cleaned whatever may have leaked really...
What is happening

What is happening

Its been a bit over a month and Lennon is doing amazingly well. He’s had a good Christmas – went to visit with his grandmother and great-aunt and uncle. He’s visited with Friends on New Years and spent time with his dad for a bit. We just came home...
A morning of follow-ups

A morning of follow-ups

Today Lennon had to have labs, ultrasound, follow up with the kidney specialist and his gastro/transplant person. He was also supposed to see the surgeon again but he was busy helping some little dude and we opted to not wait around and just touch base with them...
Time for that Hearing Aid

Time for that Hearing Aid

We recently had a consult with the Audiologist. The same one that six months ago said, she did not think a hearing aid would be a good idea. Lennon had a one-on-one aide in school that would direct/redirect Lennon as needed. However, the reality is that he will not...