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How things are

How things are

Now that Lennon is doing well, I find that I am less blogging as we are busy with normal life stuff! This is good but doesn’t mean life isn’t still challenging and instilled with worries and fears. In the past few weeks, Lennon has been doing extremely...
We still wonder about the ammonia

We still wonder about the ammonia

So I have been staying away not because I didn’t want to write, but I have been busy as well as everyone in our house was sick with the nasty cough & cold, including Lennon. We did an overnighter at the hospital just to make sure that he wasn’t...
Good Morning…I took a nap

Good Morning…I took a nap

Lennon equates nighttime sleep with a daytime nap, which can indicate some inability to differentiate timeframe. He clearly understands day from night (light and dark) but how many minutes or hours something is kind of eludes him. This is ok because the things he says...
Happenings

Happenings

So Lennon was doing well and then last week, screams and tears and no sleep plagued the Lennon. He was working on an infection around his gastro-tube area. We called the docs who stated to keep it clean and dry – Done! Then over the weekend, the area became red...
What’s new with Lennon is …

What’s new with Lennon is …

…that he is slowly progressing in taking food in. The other day for the first time in 8 months and 3 days he has eaten 1/2 a packet of the instant oatmeal..this is great progress. He was recently stuck on a potato chip and pickle diet…there is something...
Total Awesomeness

Total Awesomeness

Lennon was very excited about his party and it was what he spoke about until it happened. We sat up the yard with a tent and decorations. We talked about kids coming over and other friends for him to visit, his daddy being there and of course presents! Once people...