November 18th, 2008 a day to remember

November 18th, 2008 a day to remember

6 years ago in the early morning, my phone rang with a call I didn’t expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting...
Life as it happens to us

Life as it happens to us

It’s been good – even when it has been challenging. The other day Lennon “lost” his hearing aid because he took it out and instead of putting it into its container – well he can’t remember where he put it. Lennon has some short term...
Final Results on the Biopsy

Final Results on the Biopsy

After meeting with our local doctor on the 25th, they explained it was inflammation in the liver. Pittsburgh called today and stated that there was no change since the results in January and he continues to be in mild rejection. The good news is there is NO...
Light Cirrohsis and Mild Rejection

Light Cirrohsis and Mild Rejection

Yesterday I received a phone call from Pittsburgh. I had just picked up Jarod from school as he was staying late. I was debating answering but thought “this could be Pittsburgh” … We commenced with a little bit of chit-chat and then the news...
Elated and Scared .. all at once

Elated and Scared .. all at once

So the other night, Lennon came to me and wanted to know about his medication. Which medication he takes at night, which he takes in the morning. He looked at the bottle, attempted to pronounce the names that I hardly can pronounce. He received his evening dose.The...
The Boy is full of Poo

The Boy is full of Poo

No really – he’s full! During this last month, Lennon has had some mysterious vomiting spells and stomach hurting like ..well a lot. And then he developed some “accidents”, I thought were kinda over considering he was quite late potty training....