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The end of 2009 and Beginning of 2010

The end of 2009 and Beginning of 2010

Today is the last day of 2009…and what a year it has been. The year has been an incredible journey of faith, spiritual, strength, courage, and hope. Lennon has come a long way, from a little boy who fought to live. But then isn’t that his story? He...
It’s back to school

It’s back to school

It has been over a year since Lennon went to school and on Monday we had an IEP meeting and today is the second day of school. Its been a challenging year with many times me wanting to wrap him in a bubble. Lennon is doing incredibly well and while he still gets...
Reflection

Reflection

As I sit here I was reminded again that life is too short…tomorrow is the first year anniversary of Lennon’s liver transplant and Saturday will be the first year anniversary for the second transplant…I tell you its been a crazy year, but what I am constantly...
Medication and in the future school

Medication and in the future school

Lennon takes a lot of medication most of them are related to his liver transplant. However, Lennon does have a sleeping disorder in correlation with behavioral issues and mood swing issues. Last week we went away with the clonidine patch and the pill regime instead...
Ch-Ch-Changes

Ch-Ch-Changes

I must tell you that Lennon is doing remarkably well, rotten ( in a good way I suppose) to the core. He is gentle, loving, kind, considerate. He is also manipulative, moody, demanding. He loves cartoons and video games and thinks that by not playing video games...
Adventure

Adventure

Today we are doing something we haven’t done in awhile ~ heading to Blue Ridge Parkway for some hiking, playing and being outdoors kind of fun. We love to head out there, find us a trail and let the kids loose. Lennon used to really enjoy that until his ammonia...