We celebrated Christmas with anxiety and success

We celebrated Christmas with anxiety and success

We celebrated Christmas with anxiety and success but every year it’s the same! Lennon gets anxious about what he will receive. In the past, Christmas was met with shutting down and tantrums. The challenge we face every year is that he has expectations because...
Why I’m writing about Lennon again

Why I’m writing about Lennon again

If you have been hanging around my world, you may know that Lennon is doing incredibly well healthwise. We’ve not had any setbacks since 2014 or any other complications. What has happened however is that at the beginning of this year (2019) he was officially...
Life Lessons from a boy named Lennon

Life Lessons from a boy named Lennon

There are always lessons to be learned in life if you are open to recognizing them and most importantly if you are willing to listen. My son Lennon has been changing people’s lives, inspiring them and motivating them into being more present, to not take anything...
November 18th, 2008 a day to remember

November 18th, 2008 a day to remember

6 years ago in the early morning, my phone rang with a call I didn’t expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting...
Drama at the Eye Doctor

Drama at the Eye Doctor

Lennon has been complaining about headaches for a few weeks and I made him a long overdue eye appointment. If you have been following his story, you may remember that immediately following the urea cycle disorder diagnosis, Lennon went blind for about 6 months or so,...