Never Give Up Hope – Interview with Carol Graham

Never Give Up Hope – Interview with Carol Graham

Once upon a time I hated talking about me and my story. The memories, the pain was all too much to bear. It was like I was reliving all that I experienced and frankly who wants to relive trauma? I certainly don't, but on my own healing journey and with the support of...

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IEP’s and Evaluations make my heartache

IEP’s and Evaluations make my heartache

This last week has been a tough one when it comes to discussing Lennon's progress and the lack thereof - all at the same time. Last week, we had his annual IEP meeting and discussed where he has made progress and yes there have been some. He's done with physical...

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November 18th, 2008 a day to remember

November 18th, 2008 a day to remember

6 years ago in the early morning, my phone rang with a call I didn't expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting you know...

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Parent Teacher Conferences break my heart

Parent Teacher Conferences break my heart

I recently had a parent-teacher conference for Lennon and I tread them every single time because I tend to already know how it will go and reminding us where he struggles the most. And yet at the same time, it will give us insight on what specifically we may need to...

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Drama at the Eye Doctor

Drama at the Eye Doctor

Lennon has been complaining about headaches for a few weeks and I made him a long overdue eye appointment. If you have been following his story, you may remember that immediately following the urea cycle disorder diagnosis, Lennon went blind for about 6 months or so,...

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Being all emotional and not knowing why

Being all emotional and not knowing why

Lennon has been quite emotional for a few weeks actually and this evening it was another I am crying and I don't know why moments. I think in the past we have always attributed it to his medication, and yes while he is in Steroids, I don't think it is always about...

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Life as it happens to us

Life as it happens to us

It's been good - even when it has been challenging. The other day Lennon "lost" his hearing aid because he took it out and instead of putting it into its container - well he can't remember where he put it. Lennon has some short term memory issues that are creeping up...

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Writer, Artist and Coffee Lover! A mom of 3 boys navagating the world of special needs one cup of coffee at a time!

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