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It all boils down to…

It all boils down to…

the stent removal tomorrow. All the top dogs (transplant and gastro) are thinking that Lennons problems are because of the stent that didn't fall out when it should have. Thus given him issues in the colon area. They have been treating him with a med, that should...

Why is it that…

Why is it that…

...nurses think that parents are not present in the room or even in the care of the child. When one thing grinds on me is that when people step on parental toes. Example, Lennon receives a breakfast tray and needs to be encouraged to eat the food. While we do not stop...

Results..what results?

Results..what results?

Alright, so they put a lot of contrast down the NG tube, and Fluro told me there is no obstruction (later confirmed by the diapers we had to change, I think my last count is 15?) but he does have reflux. Ok. In the meantime, he is still getting ill. His belly is...

Stent Removal Procedure

Stent Removal Procedure

Stent removal procedure is scheduled maybe sometimes tomorrow, at least this is the thought and the game plan for the moment. When Lennon had the transplant there was a stent placed in where the bile duct was connected and generally they tend to fall out on their own,...

No real answers on the Weekends

No real answers on the Weekends

So what is new at this time? Nothing much. Lennon tested positive for c.diff, again. This could be one of the reasons he has not been feeling well and the inability to keep things down. They added antibiotics for the c.diff but also to cover other possible infections...

Round # 2 …anyone?

Round # 2 …anyone?

Might get graphic! Sorry. So following my last post, Lennon spit up yesterday .. the kinda slimey spit up, which he had being doing a few times, but this time there was blood in it. We called transplant and said that we could bring him in as this has been going on...

Adjustments, Routine and new infections?

Adjustments, Routine and new infections?

So this past week Lennon has been spitting/vomiting, but transplant has no real understanding of why he might be doing this. However, there appear to be several options. He picked up a stomach bug? Could be but doesn't seem reasonable because his spitting/vomiting is...

Not quite as new

Not quite as new

So Lennon has been dealing with some terrible acid reflux stuff or too much air, or both. We have inadvertently stopped the feeds as that is not helping him to keep things down, and after the doc visit today, they said ok as long as we can get him to drink ensure,...

Hi, I’m Petra!

Mom of 3 boys – the youngest who is special needs. I blog about our medical journey, the challenges we are facing and other odds and ends.

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