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Good Morning…I took a nap

Good Morning…I took a nap

Lennon equates nighttime sleep with a daytime nap, which can indicate some inability to differentiate timeframe. He clearly understands day from night (light and dark) but how many minutes or hours something is kind of eludes him. This is ok because the things he says...

Happenings

Happenings

So Lennon was doing well and then last week, screams and tears and no sleep plagued the Lennon. He was working on an infection around his gastro-tube area. We called the docs who stated to keep it clean and dry - Done! Then over the weekend, the area became red and...

What’s new with Lennon is …

What’s new with Lennon is …

...that he is slowly progressing in taking food in. The other day for the first time in 8 months and 3 days he has eaten 1/2 a packet of the instant oatmeal..this is great progress. He was recently stuck on a potato chip and pickle diet...there is something about the...

Total Awesomeness

Total Awesomeness

Lennon was very excited about his party and it was what he spoke about until it happened. We sat up the yard with a tent and decorations. We talked about kids coming over and other friends for him to visit, his daddy being there and of course presents! Once people...

Finally a Birthday Party?

Finally a Birthday Party?

We are closing in on Lennon's official birthday party this Saturday. He appears to do well though seems to be coming down with a small cold and unfortunately its the season for sniffles. He still chooses to not be very active and we are certainly not pressuring him to...

Happy 6th Birthday!!!!

Happy 6th Birthday!!!!

Today Lennon turned 6 and every time I try to reflect on this...my eyes go from dry to wet. I remember when he first came home how cute he was but also how challenging he was to take care of. I remember when he started to get his teeth and walk and that all he wanted...

Almost on our way home… again

Almost on our way home… again

Lennon is doing well. After the procedure there appeared to be a kink in the tube on the inside that they had to fix yesterday. Overnight they ran Pedialyte in 10ml increments every two hours and by this morning he was back to the 'normal' rate of 80 MLS/an hour. This...

Hi, I’m Petra!

Mom of 3 boys – the youngest who is special needs. I blog about our medical journey, the challenges we are facing and other odds and ends.

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