The latest on the Blog

November 18th, 2008 a day to remember

November 18th, 2008 a day to remember

6 years ago in the early morning, my phone rang with a call I didn't expect so soon. It had only been three weeks since he was listed on the transplant list. Transplant Coordinator: We have a potential liver. I am checking on how Lennon is feeling and letting you know...

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Parent Teacher Conferences break my heart

Parent Teacher Conferences break my heart

I recently had a parent-teacher conference for Lennon and I tread them every single time because I tend to already know how it will go and reminding us where he struggles the most. And yet at the same time, it will give us insight on what specifically we may need to...

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Drama at the Eye Doctor

Drama at the Eye Doctor

Lennon has been complaining about headaches for a few weeks and I made him a long overdue eye appointment. If you have been following his story, you may remember that immediately following the urea cycle disorder diagnosis, Lennon went blind for about 6 months or so,...

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Being all emotional and not knowing why

Being all emotional and not knowing why

Lennon has been quite emotional for a few weeks actually and this evening it was another I am crying and I don't know why moments. I think in the past we have always attributed it to his medication, and yes while he is in Steroids, I don't think it is always about...

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Life as it happens to us

Life as it happens to us

It's been good - even when it has been challenging. The other day Lennon "lost" his hearing aid because he took it out and instead of putting it into its container - well he can't remember where he put it. Lennon has some short term memory issues that are creeping up...

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Parenting the Adolescent Years

Parenting the Adolescent Years

Out of all the work and jobs, I have done, parenting is by far the toughest I have encountered. You hope and pray that you are doing a great job raising well-rounded children - but the *something* happens and you are questioning your parenting skills repeatedly. When...

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Things I thought I never had to do as a parent

Things I thought I never had to do as a parent

When I first became a mom I thought about the conversation I would have with my kid. I dreamt about telling some of the crazy stories from my own childhood minus a part here and there. I dreamt of happy and healthy children, who would have amazing careers and...

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Reading vs. Sleeping

Reading vs. Sleeping

Lennon comes around the corner an hour after his bedtime Lennon: Mom, I need some encouraging Me: For what? Lennon: to help me stop reading at bedtime and go to sleep Me (trying to keep a straight face): oh so you were reading when you were supposed to sleep? Lennon:...

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Writer, Artist and Coffee Lover! A mom of 3 boys navagating the world of special needs one cup of coffee at a time!

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