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In the spirit of the Phoenix and the message of rising from the ashes, you may wonder what does that have to do with organ donation awareness. Because of organ donation my son Lennon gets to have this amazing life otherwise not possible.
Since my own childhood, I had to reinvent myself to get to be the person I always was but hiding and a big part of my message these days is to rise above. Because of organ donation my son Lennon gets to have this amazing life otherwise not possible.
My son Lennon, very similar represents the Phoenix and rising above all the challenges and difficulties along the way.
Lennon was diagnosed with a rare genetic disorder (Urea Cycle Disorder) at the age of 4. A year after the diagnoses, his disorder became unmanageable and the only way he would have any kind of life – and a quality one at that – was because of organ donation.
Lennon had 3 liver transplants (2 in 2008 and the third one in 2011) and the journey was by far not easy. Soon after his first 2 transplants, he became depressed and sullen, fighting the quiet fight. It is clear to me that he wanted to be here on this earth but it was all just so hard.
He had no control over the decisions that were made for the sake of his health and the benefit of being able to live.
He finally could shake the depression and unwell feeling he had lived with for so long when he received his last transplant and has been shining and rising to the occasion ever since.
He is now a witty, sarcastic and yet gentle and wise beyond his years individual because of organ donation.
Because of organ donation my son Lennon gets to have this amazing life otherwise not possible.
Forever will I be grateful for the families who have lost their loved ones and made the decision for the benefit of others. No greater gift can be given than love.